Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: Why We Have Dads Rerun June 16, 2021
                                The Christianville Spirit                   The Spirit that Keeps Giving June 16th, 2021 – TCS # 735  Happy Father’s Day, My Readers! Yes, My Readers, Happy Father’s Day to All the Above-All Awesome Father Figures out there! And, Yes, If You […]


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