Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: John Maplewood's Gift to Christianville November 28, 2023
    The Christianville Spirit The Spirit that Creates New Beginnings November 29th, 2023- TCS # 835  Time for a Storyline, My Readers! Okay, This is an Odd Greeting even for Me. You See, Myself and A Few of My PTLS Friends come up with Random Storylines about What would Happen if All of Us PTLSer Friends, went Somewhere; Did […]


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