Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: A Hallmark Happy December December 1, 2022
    The Christianville Spirit  The Spirit that Moves Mountains December 1st, 2022 – TCS # 793  Happy December, My Readers! Wow! Can You believe that The Year is almost over?! And, What a Year it has been, but More on that after Christmas. It is that Time of Year again though! It is My Favorite Time of Year, The Month of December […]


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