Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: Thinking of A Beautiful Valentine February 14, 2024
    The Christianville Spirit The Spirit that Shines Brightly February 14th, 2024 – TCS # 845  Happy Valentine’s Day, My Readers! It is The Day of Love! Okay, so Not Everyone calls Valentine’s Day, “The Day of Love”, although It really should be referred to as that. I would imagine that It would make Those People who don’t believe […]


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