Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

RSS The Christianville Spirit

  • The Christianville Spirit: Who The Fettuccine You Are Rerun July 28, 2021
                              The Christianville Spirit                 The Spirit that Keeps Giving July 28th, 2021- TCS # 740 Ciao Bella, My Readers! This is a Unique Greeting! This is more of a Formal Greeting with a Little Italian Zest!  Let’s Say that This Greeting is more […]

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