Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

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  • The Christianville Spirit: My Map Project April 17, 2021
                    The Christianville Spirit                 The Spirit that Keeps Giving April 7th, 2021-TCS # 726  Happy April and Buongiorno, My Readers! Okay, Full Disclosure Here. Two Things, One is that Buongiorno is not spelled the Way I think it is. So, I decided to use Google Translate as The Easy Way. Because I think in My Literal Mind that It should be Spelled “Bonjourno” or maybe “Bonjuirno”. At Least, That is what It seems like to Me anyway. Secondly, This is a Greeting in Italian that means “Good Morning”. In Romance Languages, Greetings are Very Formal. I seemed to Think that It meant “Hello”. For The […]


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