Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

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  • The Christianville Spirit: I'm Dreaming of a Swiss Christmas (Mini-Series) December 1, 2021
                     Photo Credit: Switzerland Pictures (Facebook Page)                                   The Christianville Spirit                    The Spirit that Keeps Giving December 1st, 2021 – TCS # 753 Happy December and Joyeux Noël, My Readers! That […]

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