Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: My Fascination with Eurovision May 11, 2022
    The Christianville Spirit  The Spirit that Moves Mountains May 11th, 2020 – TCS # 771  Happy (Belated) Mother’s Day, My Readers! You Know, It really felt like This Mother’s Day came Early This Year. I understand that Mother’s Day is always The Second Sunday in May but, Because The First Sunday of May, was May 1st, I […]


Add a Comment

You must be logged in to post a comment