Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: Judgement v. Risk July 9, 2020
    The Christianville SpiritThe Spirit that Brings HopeJuly 8th, 2020-TCS # 695Halló, My Readers! This, Believe it or not is a New Greeting that I have not used before. It means Hello in Icelandic. Yes, My Readers! Icelandic, “The Land of Fire and Ice” as They call it. Of Course, The Land with Letters like Ð […]


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