Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

RSS The Christianville Spirit

  • The Christianville Spirit: Christian's Best Friends' Festival-A Christianville Classic November 18, 2020
                                    The Christianville Spirit                   The Spirit that Gives Hope November 18th, 2020-TCS # 712  Happy Meredith Day, My Readers! Strange Greeting This Time! I am on a Roll apparently! So, What is “Meredith Day”? Well, If You Know Me, You have […]

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