Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

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  • The Christianville Spirit: Halloween Double Feature III October 30, 2024
    The Christianville Spirit The Spirit that Shines Brightly October 30th, 2024- TCS # 877  So, Happy Halloween, My Readers! I do not like Halloween. Remember to be Kind to The Kids Trick or Treating and Try Not to be too Scary. Happy Halloween Everyone! Yes, Halloween is one of those Holidays that I dread! The Scary, The Spooky, […]

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