Meet The Face Of PTLS…
This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!
Meet the kids!
The Christianville Spirit Blog:
Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!
The Christianville Spirit
- The Christianville Spirit: 2 AM Talks with Mom (I & II)- A Christianville Classic April 22, 2025The Christianville Spirit The Spirit that Inspires The Soul April 22nd, 2025 – TCS # 896 Off on an Adventure We go, My Readers! You Know, It is always an Adventure with Me! This Adventure deals more with Something that I do on a Daily Basis. (Record Scratching Sound) So, I literally just had a Revelation as I was […]
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