Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: School Days, Overwhelming Days Rerun August 3, 2022
    The Christianville Spirit The Spirit that Moves Mountains August 3rd, 2022 – TCS # 780   Happy August, My Readers! Yes, Folks! It is that time of Year! Not only is it My Birthday next week, My 35th actually. But, Something that comes with being an August Baby. It is Back to School Time! For Those in The […]


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