Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: 16th PTLS Awareness Month Closing March 29, 2023
    The Christianville Spirit  The Spirit that Creates New Beginnings March (Marzo) 29th, 2023 – TCS # 807  Olá and Oi, My Readers! Oi, by the way is The Greeting for Hello in Portuguese spoken in both Portugal and Brazil. Olá is also how You say Hello in Portuguese. Like in Most Romance Languages, There is Difference between a […]


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