Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

RSS The Christianville Spirit

  • The Christianville Spirit: People's Perception of Normal (In Memory of Sadie) June 18, 2025
        The Christianville Spirit The Spirit that Inspires The Soul June 18th, 2025 – TCS # 903  What Do You see as “Normal”, My Readers?! Wow! A Question within a Greeting! Crazy, right?! So, I do need to address something before I continue onto My Newsletter.  I do have Some rather Less-Than-Pleasent News,  In a Sort-Of Odd Chain […]

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