Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

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  • The Christianville Spirit: My 900th Newsletter (Reader's Choice IV) May 28, 2025
       The Christianville Spirit The Spirit that Inspires The Soul May 28th, 2025 – TCS # 900  Well, My Readers, It is The Moment that We have been waiting for, My 900th Newsletter!  Yes, Ladies and Gents, 900 Newsletters that I have written! So, I am just as surprised as You are! I am amazed that It is My […]

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