Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

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  • The Christianville Spirit: In Memory of Kristi (Three Years Later, Hun!) January 8, 2025
    The Christianville Spirit The Spirit that Inspires The Soul January 8th, 2025 – TCS # 884  Greetings, Hun! and Happy January, My Readers! My Greeting is actually Greetings! That is Funny! Also, although I said Happy New Year already, It is a Happy January as well. Just because You enter January by saying “Happy New Year” does not mean You cannot say “Happy […]

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