PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: A Cruise of A Lifetime-Part 2 April 19, 2017
    The Christianville SpiritThe Spirit that Makes You WonderApril 19th, 2017-TCS # 541Happy Lynee Week, My Readers! Lynee Week?! I thought There was only a Lynee Day. I got the Idea from My Uncle Craig who names The Week of His Birthday, Craig Week. So, Why not, The Week of Lynee’s Birthday be Lynee Week and […]