PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: Love is Louder Rerun January 17, 2018
    The Christianville SpiritThe Spirit that Keeps Learning with Hope and Resilience January 17th, 2018-TCS # 579Ich Liebe Dich, My Readers! Whoa! What was That?! Kinda sounds Scary! Actually, It means “I Love You” in German. It is said with a Strong Accent to It, making it sound scary compared to Other European Languages. It is pronounced […]