Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

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  • The Christianville Spirit: 16th Homecoming Week & Lighthouse Day April 17, 2024
    The Christianville Spirit The Spirit that Shines Brightly April 17th, 2024 – TCS # 852  Happy Homecoming Week and Lighthouse Day, My Readers! Okay, so This is One of Those Greetings of Mine that has a Deeper Meaning! Now, You would think that Homecoming Week means, The Week that You go to the Homecoming Dance, sort of like Prom. It […]

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