PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: My Brother's View on Me-A Christianville Classic June 21, 2017
    The Christianville SpiritThe Spirit that Makes You WonderJune 21st, 2017-TCS # 550Happy MidSummersdag (or Mid-Summer), My Readers! Okay, so Mid-Summer is actually a Swedish Tradition that basically honors The Summer Solstice, The Longest Day of The Year, and To Us, Americans, The First Day of The Season of Summer. Anyway, so After 10 Years of […]