PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: The Untold Story of Lynee-A Christianville Classic May 24, 2017
    The Christianville SpiritThe Spirit that Makes You WonderMay 24th, 2017-TCS # 546Happy LRD, Everyone! LRD? What’s LRD?! It is My new acronym for Lynee Day. The Day that honors My Childhood Friend, Lynee Watson. LRD stands for “Lynee Remembrance Day”, The Official Title of Lynee Day at least in My Head. So, I have been […]