PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: An Unconventional Love Story February 14, 2018
    The Christianville SpiritThe Spirit that Keeps Learning with Hope and ResilienceFebruary 14th, 2018-TCS # 583Happy Valentine’s Day, My Readers! Today is The Day of Love! Okay, so Not Everyone calls Valentine’s Day, “The Day of Love”, although It really should be referred to as that. I would imagine that It would make Those People who […]