PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

http://thechristianvillespirit.blogspot.com/

RSS The Christianville Spirit

  • The Christianville Spirit: What I Love about Sirius/XM Radio September 13, 2017
    The Christianville SpiritThe Spirit that Makes You WonderSeptember 13th, 2017-TCS # 561Turn It Up, My Readers! Turn What up, You might ask? Well, You are in for a Treat. Okay, This Week’s Newsletter may not be The Most Conventional of Topics that I write about but, It does have a History. You See, I wrote […]

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