PTLS Stars

Meet The Face Of PTLS…

This is our opportunity to introduce you to the people that have been diagnosed with Potocki-Lupski Syndrome (PTLS), their lives, their challenges, and their accomplishments. Read their inspiring stories and submit your own to us. We would love to hear from you!

Meet the kids!

The Christianville Spirit Blog:

Your guide to seeing though the eyes of an adult with Potocki-Lupski Syndrome (PTLS) known as dup.17p11.2 I believe that you will enjoy it and you will see The World through My Eyes!

RSS The Christianville Spirit

  • The Christianville Spirit: My PTLS Awareness Month Closing March 29, 2017
    The Christianville SpiritThe Spirit that Makes You WonderMarch (Marzo) 29th, 2017- TCS # 539Ahoj, My Readers! That is a Greeting in Czech that means “Hello”. Well, My Awesome and Brilliant PTLS Family Members and Friends, We did it! We spread awareness far and wide of Potocki-Lupski Syndrome. Like a Mother to Child saying, I am […]