This is a place where families, and those who support the family of one with PTLS (dup 17p11.2), can share information, experiences, ask questions, and be a part of a community who understands the journey they are on. This group is a secured group that complies with Healthcare Privacy (HIPAA) and personal privacy. Your personal email and information is not exposed, to protect your privacy, which will allow you to feel comfortable discussing important topics needed to help you and your child.
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